As described by Carrie Scott
Former Development Director | Rising Star Outreach
From his boundless energy, it’s hard to guess that Jayaraj is nearly 70 years old. He is the consummate entertainer and as I walk up to him, I hear his unmistakable tenor voice enthusiastically singing, “My name is Jayaraaaaaaj” in greeting.
Like most people in the leprosy colonies, Jayaraj has had a challenging life. He worked as an accountant for a cruise line company until he was diagnosed with leprosy at the age of 20, at which point he was asked by the company to leave. After that, he taught Tamil and Math in the government’s home school even though he only has an eighth-grade education level. Jayaraj met his wife, Jayamary, while receiving treatment for leprosy. Shortly after they married, a Catholic priest in Chennai told them about the Mogalvadi colony. Both Jayaraj and Jayamary dealt with a lot of discrimination from the local people and felt it was best to isolate themselves in the colony.
I’m not naive enough to believe that he is happy all of the time or even every time I’ve been in his colony, but I think he makes a choice. He chooses to be cheerful and to joke, to dance, and to make music with us, and we love to be with him in return because there’s something perspective-shifting about being in his presence.
As described by Allison Tueller
Communications & Data Manager | Rising Star Outreach
Shanti was among the first people I met after arriving in India for the first time. A little jet lagged, I was already overwhelmed by all of the new sights, smells, and sounds of India when I caught sight of her pushing herself through the colony. I’m still amazed at how beautiful and radiant she is. Through her bright smile, she has a peaceful stillness that makes me want to be close to her.
Although it is obvious that life has been difficult for her, Shanti’s strong spirit shines through in her smile. And while she is now cured from leprosy, the disease left her with significant disabilities. Yet it is also obvious that she is more than just a leprosy patient or an amputee. She is confident and self-sufficient, happily cooking and selling food in her community.
After receiving microgrants years ago, Shanti used the money to invest in her cooking business. As it grew and became profitable, she repaid the loans and reinvested in her business. Through this process, she has found dignity and hope for a better life.
She projects confidence, competence, and grace – I watched her expertly haggle the price of vegetables with a street merchant, all while stoking her cooking fire, carefully peeling garlic cloves (essentially one-handed), and making everyone laugh and smile.
Susila lives in the Bharatapuram leprosy colony with her husband. Her husband is a leprosy affected patient and because of his disabilities, she has been the sole provider for fifteen years.
After receiving loans, training, and support to grow her business, she’s learned how to manage money, increase her sales, and support her family.
She sells perfume, incense, candles, rice cakes, and chutney. She’d like to thank all those that have supported her business which enables her family to live a better life and get an education . She does not read or write, but she has now made it possible for her children to read and write.
Jennifer was just a toddler when she began to show the signs and symptoms of leprosy. Discarded and abandoned by her parents as a baby, she was rescued by her grandfather even though he was suffering severe effects from leprosy. He was determined that she have a better life, and so he entrusted Jennifer to our care.
Luckily for Jennifer, the leprosy was caught early, so she was easily cured with just one packet of a multi-drug therapy. It is heartbreaking to think what would have become of her life without the intervention of her grandfather and that one packet of medicine.
Now Jennifer is getting ready to graduate this year. She is hoping to get one of the medical scholarships offered to our students who qualify for medical school. She wants to be an eye surgeon so that she can treat the many leprosy patients who suffer from eye problems – just like her grandfather.
Story originally told by Becky Douglas
Founder & President | Rising Star Outreach
When my friend, Padma, first visited a leprosy colony deep in the south of Tamilnadu, she had high hopes of being able to encourage the colony members to stop begging and begin small businesses by pooling their savings and then providing each other small loans, one by one.
She met with a few women who seemed to be interested, but Padma wanted to involve every woman. She began to go door to door. There were a few men who were interested and so Padma included them, as well. But she was particularly interested in the women.
The “homes” in this colony were really more like “apartments”. They had been built of cement by the government. The only difference is that these apartments had only one room. All four walls, floor and ceiling were formed by cement. There were no bathrooms, kitchens, or bedrooms. Cooking was done outside over open fires. Bathrooms were wherever you could find a private spot. The residents of the colony either slept outside or on a mat in their one room—often shoulder to shoulder.
These rooms, about six feet square, generally were not burdened by furniture, with an occasional exception of a bed. The corners of the rooms held plastic or tin pots to collect water, a tin pan or two to cook food, and perhaps a couple of tin plates for eating. Some of the homes had a rope strung overhead to dry the ragged clothes owned by the family. Other than that, the homes were barren.
Padma entered one of these “homes”. It was poorly lit but Padma could make out a lumpy shape in the corner. Intrigued, Padma looked closer and noticed that there were feet visible under the cloth. Could this be a hunched woman covered by a threadbare sari, as if someone had thrown a blanket over a piece of old furniture?
Padma gently addressed the “lump.” There was no response. She tried again without any more success, except that the protruding feet disappeared into the lump. At this point a man entered the room from the outside. He seemed surprised to see Padma in his cramped little room. “What are you doing here?” he asked suspiciously. Padma told him she had come to speak to his wife.
“Humpff”, he grunted. “Don’t waste your time. She’s mental! She can’t answer you.” He was clearly ready for Padma to depart. Reluctantly Padma turned away.
Padma was haunted by the mental image of the woman hunched down in the corner of a dark room, with a piece of material thrown over her. She tried to think of a way she could get a response from the woman and perhaps break through the silence.
A week later Padma was back in the colony to help people with their new businesses. When she finished with the Women’s Self-help Group she had started the week before, Padma made her way to the home with the woman sunk into the corner.
The husband glanced up as Padma entered. He was not pleased to see Padma back in his home. She quickly spoke up and said, “I have a gift for your wife.” She pulled a baby turkey out of the large bag that she had brought with her. The husband laughed and said, “She can’t have it—I told you—she’s mental.
Refusing to be deterred, Padma set the turkey on the floor in front of the hidden wife. She gave the turkey a little nudge toward the woman. The man glowered at Padma, irritated that she wouldn’t go away. He prepared to order her out of the house.
But the baby turkey had walked up to the woman and begun pecking at her covering. Both Padma and the husband were surprised to see the figure in the corner lift up the edge of her covering, push the turkey away, and pull the cover back down over her head.
“See, I told you so”, the man said triumphantly. “She can’t have your gift, because she’s mental.” While Padma and the husband talked, the baby turkey had walked back to the hump in the corner and began pecking at her sari. This time the woman lifted up the covering, reached out, grabbed the baby turkey, brought it into her bosom and then immediately closed the covering back down to the ground. This time it was Padma who smiled! Nothing more happened, so Padma left.
The next time Padma came to the colony an amazing sight awaited her. When Padma entered the woman’s home, she was amazed to see the woman sitting in the corner with her head uncovered, playing with the little turkey. She had apparently bonded with the little bird!
Padma was so excited with this progress that the next week when she came to the colony, she brought the woman ten baby turkeys to raise as the beginnings of a micro-business.
I later had the opportunity of visiting this woman. What a transformation had taken place. When Padma and I approached the colony we saw this woman confidently stride by, followed by a gaggle of turkeys. She looked like the Pied Piper of turkeys! Padma called out to her, “Madam, what are you doing?” She responded cheerily, “I’m walking my turkeys. I walk them for 45 minutes every morning and every night.” She confided, “They are like my children!”
As I met with her I was struck by how confident she sounded. Her turkey business had been a phenomenal success. She was now the wealthiest woman in the colony. In fact, the month previously she had been voted the colony leader! What a contrast!
It turns out that she was not “mental” at all. She had been so terribly depressed that she had just pulled the hood over her head and waited in the corner to die. Now she was a happy, confident woman.
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